Congress Programme

Day 4 June 6

Time	Session

06:30 08:30	Symposium 7: A Continental Blueprint: Africa CDC’s Framework for Scaling Up Sickle Cell Disease Care Through Primary Health Integration Sponsored by Africa Centers for Disease Control and Prevention and Texas Children’s Hospital Mr Moudu Njai Other Dr Mohammed Abdulaziz Panelist Dr Nmazuo Ozuah Panelist Prof Dr Julie Makani Panelist
08:30 10:00	Plenary Session 5: Hemoglobin F and Hydroxyurea in Sickle Cell Disease Professor Ambroise Wonkam Chair Harnessing African Populations Genomic Variation to Improve Our Understanding of HbF Modifiers in Sickle Cell Disease Professor Ambroise Wonkam Speaker From Gene Editing for BCL11A to Small Molecule Therapy to Increase HbF in Sickle Cell Disease Dr Gregory Newby Speaker Improving Access to Hydroxyurea for Sickle Cell Disease in Africa: What Should Be Done? Professor Leon Tshilolo Speaker
10:00 10:30	Break
10:30 12:00	Oral Abstracts Top Abstracts - Six Abstracts Dr Moji Awogbade Co-Chair Professor Ibrahima Diagne Co-Chair
12:00 13:00	Lunch
13:00 14:00	Plenary Session 6: The Power of One Voice: Influence and Evidence to Scale Quality Sickle Cell Disease Care. What Will It Take? Dr Andrew Louden Co-Chair Dr Paul Domanico Co-Chair Dr Carlos Rodriguez-Galindo Panelist Dr Katy Kehinde Craig Panelist Dr Muyi Aina Panelist Mr Moudu Njai Panelist Professor Isaac Odame Panelist The Power of One Voice and a Proposal to Get Us There Dr Paul Domanico Speaker From Theory to Practice: Patient-centered Approaches to Improve the Management of Sickle Cell Disease in Sub-saharan Africa Dr Fred Piel Speaker
14:00 15:00	Symposium 7: SickleInAfrica – Newborn Screening, Malaria Study, Registry and Standards of Care Prof Dr Julie Makani Co-Chair Professor Ambroise Wonkam Co-Chair Sickle Cell Disease Ontology Professor Nicola Mulder Speaker SickleInAfrica Registry Professor Ambroise Wonkam Speaker Standards of Care Dr Vivian Paintsil Speaker Patients as Partners Framework Dr Nchangwi Syntia Munung Speaker Newborn Screening Professor Obiageli Nnodu Speaker Malaria Study Professor Aldiouma Guindo Speaker
15:00 15:30	Plans for 6th Global Congress on Sickle Cell Disease and the World Coalition on Sickle Cell Disease Professor Isaac Odame Chair
15:30 18:30	SickleInAfrica: Consortium Meeting with National Institute of Health Invitation Only