Congress Programme

Day 2 June 4

Time	Session

07:30 08:30	Registration
08:30 10:00	Plenary Session 3: Pain in Sickle Cell Disease Professor Kalpna Gupta Co-Chair Professor Wally Smith Co-Chair Integrative Pain Model and Evidence to Support It From Mice and Human Studies Professor Kalpna Gupta Speaker Post-transformative (Gene Therapy, Transplant Therapy) Sickle Cell Disease Pain Professor Deepika Darbari Speaker US vs Non-US Sickle Cell Disease Pain Treatment Guidelines (With Emphasis on Great Britain) Professor Wally Smith Speaker International Differences in Sickle Cell Disease Pain Management, Including (Lack of) Use of Multimodal Therapies Dr Andrew Campbell Speaker Nigerian Patient Experience With Sickle Cell Disease Pain Treatment Mr Danladi Ibrahim Speaker
10:00 10:30	Break
10:30 12:00	Parallel Session 4: Clinical Variability and Genetic Modifiers of Sickle Cell Disease Dr Stephan Menzel Co-Chair Professor David Rees Co-Chair Genetic Investigation of Fetal Hemoglobin Persistence in Africa Professor Ambroise Wonkam Speaker How to Leverage the Power of Genetic Studies in African Populations Dr Oyesola Ojewunmi Speaker Genetic Investigations of Neurological Outcomes in Sickle Cell Disease Dr John Brewin Speaker	Parallel Session 5: Benefits and Challenges of Transfusion Therapy in Sickle Cell Disease Sponsored by Terumo Blood and Cell Technologies Professor Saliou Diop Co-Chair Red Blood Cell Exchange for the Management of Sickle Cell Disease Complications Mr Eric Mwenda Speaker Acute Complications: When is Red Blood Cell Transfusion Needed? Dr Andrew Campbell Speaker Alloimmunization Against Red Blood Cell Antigens in Sickle Cell Disease Professor Saliou Diop Speaker Chronic Complications: When Should Transfusion Be Performed? Professor Pablo Bartolucci Speaker	Parallel Session 6: Women’s Health in Sickle Cell Disease Dr Eugenia Vicky Asare Co-Chair Professor Bosede Afolabi Co-Chair Is There a Role for Low Dose Aspirin in Pregnancy in Sickle Cell Disease? Findings from PIPSICKLE TRIAL Dr Ochuwa Babah Speaker Multidisciplinary Sickle Cell Disease Obstetric Care Professor Samuel Antwi Oppong Speaker Fertility Preservation of Women With Sickle Cell Disease Dr Lydia Pecker Speaker
12:00 13:00	Lunch
13:00 14:30	Parallel Session 7: Co-morbidities Impacting the Severity of Sickle Cell Disease Professor Aldiouma Guindo Co-Chair Professor Anazoeze Madu Co-Chair Impact of Nutrition on Sickle Cell Disease Complications and Outcomes Professor Shehu Abdullahi Speaker Sickle Cell Gene and Malaria Protection Professor Aldiouma Guindo Speaker Leg Ulcers in Sickle Cell Disease: Possible Predispositions Professor Anazoeze Madu Speaker	Parallel Session 8: End-organ Damage and Co-morbidities in Sickle Cell Disease Professor Fred Sarfo Co-Chair Professor Jennifer Knight-Madden Co-Chair Chronic Cardiopulmonary Complications of Sickle Cell Disease Across the Lifespan Professor Elizabeth Klings Speaker Overview of Sickle Cell Disease-related Nephropathy Professor Jeffrey Lebensburger Speaker Updates on Cerebrovascular Disorders in Sickle Cell Disease Professor Fred Sarfo Speaker	Parallel Session 9: Public Health/Implementation Science in Sickle Cell Disease Dr Kofi Nyarko Co-Chair Dr Maureen Achebe Co-Chair WHO SCD Guidelines for LMICs and WHO AFRO Treatment Guides and Framework Dr Antonio Armando Speaker Dr Kofi Nyarko Speaker Experience of PEN-Plus in Sickle Cell Disease Dr Ann Akiteng Speaker CHAI Strategy to Tackle Sickle Cell Disease: Market Shaping and Ecosystem Strengthening Dr Nere Otubu Speaker Dr Sheetal Ghelani Speaker
14:30 15:00	Break
15:00 16:30	Parallel Session 10: Health Care Transitions in Sickle Cell Disease Professor Biobele Brown Co-Chair Professor Jane Hankins Co-Chair Gaps and Frameworks for Health Care Transition Professor Jane Hankins Speaker Quality Indicators and Success in Health Care Transition Dr Tarun Aurora Speaker Implementation of Health Care Transition Programs in Brazil Professor Maria Stella Figueiredo Speaker Implementation of Health Care Transition Program in Nigeria Dr Ijeoma Akinwumi Speaker Wrap-up Professor Biobele Brown Speaker	Parallel Session 11: Increasing Knowledge of Patients and Community About Sickle Cell Disease Professor Lakshmanan Krishnamurti Co-Chair Professor Lewis Hsu Co-Chair Pain is Loud, Organ Damage is Silent Professor Jeffrey Lebensburger Speaker Physical Activity in Sickle Cell Disease Can Be Safe and Not Trigger Pain Professor Laurent Messonnier Speaker What is the Path Forward for Gene Therapy in Africa? Professor Lakshmanan Krishnamurti Speaker	Parallel Session 12: Creating Healthcare Capacity Through Education and Training in Sickle Cell Disease Dr. Yvonne Carroll Co-Chair Professor Olivat Rakoto Co-Chair Nurse Champion Model for Early Diagnosis and Management of Children With Sickle Cell Disease in Sierre Leone Dr Cheedy Jaja Speaker Nursing Excellence Train the Trainer Sickle Cell Bootcamp Dr Keesha Roach Speaker Dr Stephanie Ibemere Speaker Development of Comprehensive Sickle Cell Disease Training Program for Health Care Professionals: Identifying Gaps and Solutions Dr. Catherine Barclay Speaker Professor Uma Athale Speaker
16:30 17:30	Symposium 3: The Latest Data in Pyruvate Kinase Activation in Sickle Cell Disease Sponsored by: Agios Pharmaceuticals Professor Biree Andemariam Speaker
17:30 19:00	Poster Sessions
19:30 21:30	Dinner Symposium 4: Leading With Science to Empower People With SCD to Live Unlimited Sponsored by Novo Nordisk Prof Dr. Baba Inusa Co-Chair Prof Dr. Ifeyiwa Osunkwo Co-Chair Dr Enrico Novelli Panelist Dr Ibrahim Idris Musa Panelist