Congress Programme

Day 2 June 4

Time	Session

07:30 08:30	Registration
08:30 10:00	Plenary Session 3: Pain in Sickle Cell Disease Kalpna Gupta Co-Chair Prof Wally Smith Co-Chair Integrative pain model and evidence to support it from mice and human studies Kalpna Gupta Speaker Post-transformative (gene therapy, transplant therapy) sickle cell disease pain Deepika Darbari Speaker US vs Non-US sickle cell disease pain treatment guidelines (with emphasis on Great Britain) Prof Wally Smith Speaker International differences in sickle cell disease pain management, including (lack of) use of multimodal therapies Dr Andrew Campbell Speaker Nigerian patient experience with sickle cell disease pain treatment Mr Danladi Ibrahim Speaker
10:00 10:30	Break
10:30 12:00	Parallel Session 4: Clinical Variability and Genetic Modifiers of Sickle Cell Disease David Rees Co-Chair Stephan Menzel Co-Chair Genetic investigation of fetal hemoglobin persistence in Africa Prof Ambroise Wonkam Speaker How to leverage the power of genetic studies in African populations Oyesola Ojewunmi Speaker Genetic investigations of the clinical diversity of sickle cell disease in Brazil John Brewin Speaker	Parallel Session 5: Benefits and Challenges of Transfusion Therapy in Sickle Cell Disease Prof Saliou Diop Co-Chair Rafaella Columbatti Co-Chair Red Blood Cell Exchange for the Management of SCD Complications Acute complications: when is red blood cell transfusion needed? Dr Andrew Campbell Speaker Alloimmunization against red blood cell antigens in sickle cell disease Prof Saliou Diop Speaker Chronic complications: when should transfusion be performed? Pablo Bartolucci Speaker	Parallel Session 6: Women’s Health in Sickle Cell Disease Bosede Afolabi Co-Chair Dr Eugenia Vicky Asare Co-Chair Is there a role for low dose aspirin in pregnancy in sickle cell disease? Findings from PIPSICKLE TRIAL Ochuwa Babah Speaker Multidisciplinary sickle cell disease obstetric care Samuel Antwi Oppong Speaker Fertility preservation of women with sickle cell disease Lydia Pecker Speaker
12:00 13:00	Lunch
13:00 14:30	Parallel Session 7: Co-morbidities Impacting the Severity of Sickle Cell Disease Anazoeze Madu Co-Chair GUINDO Aldiouma Co-Chair	Parallel Session 8: End-Organ Damage and Co-morbidities in Sickle Cell Disease Fred Sarfo Co-Chair Jennifer Knight-Madden Co-Chair Chronic cardiopulmonary complications of sickle cell disease across the lifespan Overview of sickle cell disease-related nephropathy Jeffrey Lebensburger Speaker Updates on cerebrovascular disorders in sickle cell disease Fred Sarfo Speaker	Parallel Session 9: Public Health/Implementation Science in Sickle Cell Disease Dr Maureen Achebe Co-Chair Kofi Nyako Co-Chair WHO SCD guidelines for LMICs and WHO AFRO treatment guides and framework Dr Antonio Armando Speaker Kofi Nyako Speaker Experience of PEN-Plus in Sickle Cell Disease Dr. Ann Akiteng Speaker CHAI Strategy to tackle SCD: Market shaping and Ecosystem Strengthening Dr. Nere Otubu Speaker Dr. Sheetal Ghelani Speaker
14:30 15:00	Break
15:00 16:30	Parallel Session 10: Health Care Transitions in Sickle Cell Disease Biobele Brown Co-Chair Prof Jane Hankins Co-Chair Gaps and frameworks for health care transition Prof Jane Hankins Speaker Quality indicators and success in health care transition Dr Tarun Aurora Speaker Implementation of health care transition program in Nigeria Ijeoma Akinwumi Speaker Wrap-up Biobele Brown Speaker	Parallel Session 11: Increasing Knowledge of Patients and Community About Sickle Cell Disease Lakshmanan Krishnamurti Co-Chair Lewis Hsu Co-Chair Pain is loud, organ damage is silent Jeffrey Lebensburger Speaker Physical activity in sickle cell disease can be safe and not trigger pain What is the path forward for gene therapy in Africa? Lakshmanan Krishnamurti Speaker	Parallel Session 12: Creating Healthcare Capacity Through Education and Training in Sickle Cell Disease Prof Olivat Rakoto Co-Chair Yvonne Carroll Co-Chair Nurse Champion Model for Early Diagnosis and Management of Children with SCD in Sierre Leone Dr. Cheedy Jaja Speaker SCD Nursing Excellence Train-the-Trainer Model Dr. Keesha Roach Speaker Dr Stephanie Ibemere Speaker Development of Comprehensive SCD Training Program for Health Care Professional: Identifying Gaps and Solutions Ms Catherine Barclay Speaker Prof Dr Uma Athale Speaker
16:30 17:30	Symposium 3: Pharma Sponsored Symposium Sponsored by: Agios Pharmaceuticals
17:30 19:00	Poster Sessions
19:30 21:30	Dinner Symposium 4 (Pharma Sponsored) Sponsored by: Novo Nordisk Rare Diseases