Congress Programme

Day 3 June 5

Time	Session

07:00 08:15	Workshop: Unlocking the potential of Sickle Cell Research in Africa: Insights, Experience & Capacity Building Sponsored by IQVIA Professor Obiageli Nnodu Chair Dr Kwaku Marfo Panelist Mr Jude Enejoh Panelist Prof Maxwell Madueke Nwegbu Panelist
07:30 08:30	Registration
08:30 10:00	Plenary Session 4: Curative Therapies in Sickle Cell Disease Dr Alexis Thompson Co-Chair Professor Nosa Bazuaye Co-Chair Allogeneic Transplantation for Sickle Cell Disease Professor Adetola Kassim Speaker Gene Therapy and Gene Editing Therapy for Sickle Cell Disease Dr Alexis Thompson Speaker Access to Curative Therapies in Low-and Middle-income Countries Professor Nosa Bazuaye Speaker
10:00 10:30	Break
10:30 12:00	Parallel Session 13: Cerebrovascular Complications in Sickle Cell Disease Professor Fenella Kirkham Chair TCD Screening for Stroke Risk Prof Ikeoluwa Lagunju Speaker Stroke Prevention and Management Professor Shehu Abdullahi Speaker Neuroimaging in Sickle Cell Disease Dr Mboka Jacob Speaker Prevention of Cognitive and Psychological Problems Dr Mary Ampomah Speaker	Parallel Session 14: Stigma of Sickle Cell Disease Dr Kofi Anie Co-Chair Professor Biree Andemariam Co-Chair Multi-disciplinary and Global Overview of Stigma in Sickle Cell Disease Dr Kofi Anie Speaker Case Presentation Professor Biree Andemariam Speaker Global Perspectives on Stigma in Sickle Cell Disease Panel Discussion Ms Cassandra Trimnell Panelist Ms Jenica Leah Panelist Ms. Blessing Inegbedion Panelist		Parallel Session 15: Preventive Care for Sickle Cell Disease in Sub-Saharan Countries and India Prof Dr Dapa Diallo Co-Chair Professor Dipty Jain Co-Chair Integrating Sickle Cell Disease Care Into India's Primary Health System Dr Manisha Madkaikar Speaker Hydroxyurea Access and Utilization in Sub-saharan Countries Prof Dr Dapa Diallo Speaker Infection Prevention and Vaccination: Reducing Childhood Mortality Professor Dipty Jain Speaker
12:00 13:00	Lunch		Poster Sessions
13:30 14:30	Symposium 5: The Power of Public-private Partnerships: Strengthening the Sickle Cell Disease Ecosystem in Africa Sponsored by Novartis Pharmaceuticals Ms Maureen Mukanga Chair Dr Charles Kiyaga Panelist Dr Elisha Osati Panelist Dr Festus Muigai Njuguna Panelist Ms Racey Muchilwa Panelist Ms Selina Olwanda Ogweno Panelist
14:30 16:00	Oral Abstracts Top Abstracts - Six Abstracts Dr Najibah Galadanci Co-Chair Professor Adekunle Adekile Co-Chair
16:00 16:30	Break
16:30 18:00	Parallel Session 16: Quality of Life in Sickle Cell Disease: What Matters for Mental Health and Well-being? Dr Nchangwi Syntia Munung Co-Chair Professor Marsha Treadwell Co-Chair From Stigma to Support: Transforming the Lives of Sickle Cell Warriors Through Resources Professor Lewis Hsu Speaker From Surviving to Thriving: Empowering Patients as Co-Creators of Personalized and Culturally Relevant Sickle Cell Solutions Prof. Okocha Emmanuel Chide Speaker Resilience Isn’t Enough: Bridging the Gap Between Sickle Cell Warriors and the Systems That Shape Their Quality of Life Ms Christelle Salomon Speaker	Parallel Session 17: Animal Models of Sickle Cell Disease Dr David Archer Co-Chair Prof Dr Solomon Ofori-Acquah Co-Chair Overview of Transgenic Sickle Cell Mouse Models for Drug Development Dr David Archer Speaker Novel Interventions to Target Sickle Cell Pain: Preclinical Evidence From Sickle Cell Mice Professor Kalpna Gupta Speaker In Vivo Evaluation of Novel Biologics for Prevention and Treatment of Multi-system Tissue Damage in Sickle Cell Disease Prof Dr Solomon Ofori-Acquah Speaker		Parallel session 18: Consortium on Newborn Screening in Africa Dr Belinda Avalos Co-Chair Dr Nancy Berliner Co-Chair Strengthening Laboratory Capacity for Newborn Screening Efforts Dr Charles Kiyaga Speaker Empowering Health Care Professionals and Bolstering Linkage to Care for Sickle Cell Disease Dr Bernard Awuonda Speaker Engaging With Governments and Local Stakeholders to Scale Up and Sustain Newborn Screening Efforts Dr Lulu Chirande Speaker Capacity Development Opportunities With the American Society of Hematology Dr Theresa Coetzer Speaker
18:00 19:00	Symposium 6: Global Gene Therapy Initiative Professor Jennifer Adair Chair Dr Alexis Thompson Panelist Dr Julie Kanter Panelist Mr Jimi Olaghere Panelist Mrs Evelyn Mwesigwa Harlow Panelist Prof Dr Julie Makani Panelist