Ms Cassandra Trimnell

Cassandra Trimnell is the Founder and Executive Director of Sickle Cell 101 (SC101), a patient advocacy organization that connects, educates, and empowers the global sickle cell community through targeted digital engag ement and data-driven initiatives. Living with sickle cell disease herself, Cassandra brings both lived experience and professional expertise to her advocacy for patient-centered care and culturally responsive health education. Under her leadership, SC101 has become the global pulse of the sickle cell community hosting the largest and most comprehensive digital platforms for real-time community insights and patient education. SC101 reaches over 3 million users annually, 75% of whom live with sickle cell disease, across 130 countries. Cassandra is an award-winning certified hemoglobinopathy counselor and served on the NIH-NHLBI Sickle Cell Disease Advisory Committee. Her work centers on health equity, stigma reduction, and amplifying patient voices in research and clinical dialogue.